Families of Spinal Muscular Atrophy have been coordinating a National Awareness Month for SMA since 1996. Raising awareness of SMA in the general public can help lead to increased resources for SMA research and better care for SMA patients. The majority of people, including doctors, nurses and community members, do not know about SMA until it directly affects them.
There are numerous activities that citizens carry out in local communities to promote general awareness for Spinal Muscular Atrophy. Many get involved and engage their local area by writing an article for your newspaper or online publication, host a candlelight vigil or balloon release in honor of our SMA kids, contact your elected officials and request a proclamation stating August is SMA Awareness Month for your town or city.
For more visit the SMA website.
Guthrie News Page would like to thank Bennie Barker for suggesting and help promoting this cause.
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